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Home→BuddyPress→Activity Log in

Activity

  • All Members 17
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  • Profile picture of BethR

    BethR started the topic Food Sensitivities/digestive problems post radiation? in the forum Open Discussion Forum 3 years, 7 months ago

    I’ve had stomach problems ever since my radiation treatment, decades ago. No doctor will say that my problems are related to the 6 weeks of radiation treatment I received. I think they’re clueless. Do any of you have digestion problems post radiation? Thanks.

  • Profile picture of Kaela00

    Kaela00 became a registered member 3 years, 7 months ago

    Kaela00

    @kaela00

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  • Profile picture of Stuart

    Stuart became a registered member 3 years, 11 months ago

    Stuart

    @stuartjonas

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  • Profile picture of BethR

    BethR and Profile picture of Rollercoaster845Rollercoaster845 are now friends 4 years ago

    Rollercoaster845

    @shirla

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  • Profile picture of Herb

    Herb became a registered member 4 years ago

    Herb

    @revclock

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  • Profile picture of BethR

    BethR changed their profile picture 4 years ago

    BethR

    @bethr

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  • Profile picture of BethR

    BethR became a registered member 4 years ago

    BethR

    @bethr

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  • Profile picture of Rollercoaster845

    Rollercoaster845 posted an update 4 years ago

    Recent 5yr craniversary 6/7/18 MRI showed existing tumor stable.

  • Profile picture of Rollercoaster845

    Rollercoaster845 became a registered member 4 years ago

    Rollercoaster845

    @shirla

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  • Profile picture of Linda

    Linda became a registered member 4 years ago

    Linda

    @lindaeyles

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  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Parents of Diagnosed ChildrenParents of Diagnosed Children 8 years, 5 months ago

    Bilateral Choroid Xanthogranuloma in Grandson

    Hello, I am Grandma but very involved with the now 5yr old grandsons journey. Diagnosed when he was 3,saw numerous pediatric specialists, neurosurgeon and neurologist disagreed about surgery left it to God,  one convinced the other, had surgery in April 2013 (he was 4 then), Upstate Golisano Ch…[Read more]

  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Parents of Diagnosed ChildrenParents of Diagnosed Children 9 years, 11 months ago

    Hi everyone. My son, Jackson, had his tumor resection this past Thursday, July 19th. The doctors were amazing. The procedure took about 4 1/2 hours to complete. He spent a little over 24 hours in the pediatric ICU and then then almost 48 hours in the regular pediatric wing. We are home now and he is doing remarkably well. We are so blessed…[Read more]

  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Parents of Diagnosed ChildrenParents of Diagnosed Children 9 years, 11 months ago

    Hi, my son, Isaac, was diagnosed with Juvenile Pilocytic Astrocytoma in January 2006 just before he turned 7 years old. His tumor was in the hypothalamus/optic chaism region. After a biopsy, he started chemo (carboplatin/vincristine). Two months later, his tumor grew over 2cm and spread throughout his brain and spine. After another biopsy to…[Read more]

  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Parents of Diagnosed ChildrenParents of Diagnosed Children 9 years, 11 months ago

    Hi ladies. I’m glad you’re making use of this forum. My mom was all alone during my 2 operations and radiation treatment. My parents were divorced and my dad was there, but not like my mom. And he was remarried. Actually, most of my family is still on my s*#t list. So it’s really nice seeing you connect. I feel like it’s a gift for my mom. I love…[Read more]

  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Parents of Diagnosed ChildrenParents of Diagnosed Children 9 years, 11 months ago

    My 12 year old son was diagnosed with a tumor in the anterior medial portion of his right temporal lobe at the beginning of April. We found it as a result of an MRI done after going to the doctor about odd headaches. He described the headaches as shocks of pain, though not electrical, coming in pulses sometimes with dizziness and once with funny…[Read more]

  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Parents of Diagnosed ChildrenParents of Diagnosed Children 10 years ago

    My son had an epidermoid tumor removed from left frontal lobe at 22 yrs old. It has caused alot of depression. He’s tried different meds but they had really bad side effects. Has anyone had any hormone testing with any help?

  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Parents of Diagnosed ChildrenParents of Diagnosed Children 10 years, 4 months ago

    Hi, I am new to this site. Sitting here at the children’s hospital of Philadelphia where my 13 year old daughter just got admitted for headaches. She had a trigeminal schwannoma removed in 2008. She still has severe headaches that they don’t know why and can’t find a med to help!

  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Cognitive IssuesCognitive Issues 10 years, 4 months ago

    I have been getting headaches a lot at school when I try too hard to think of things and Ive been wondering if its a bad thing like its my brain saying hey calm down! Or if its like a muscle that gets sore when its exercised but its a good thing. Before I started school my brother told me something really simple that stuck with me. He said dont…[Read more]

    • Profile picture of Anonymous
      Anonymous replied 10 years, 1 month ago

      I have these headaches too. I find that I process things much slower compared to before surgery(10/11). And the struggle to find words at times most frustrating. the acceptance of the new normal is hard: headaches, seizures, mental changes.. Actually, I am still trying to find my new normal, it is an evolving thing. I still am of work, not…[Read more]

  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Cognitive IssuesCognitive Issues 10 years, 4 months ago

    Welcome to my little group David. It’s SO nice to meet someone else who shares my annoying issues! Life can get exhausting when you feel like you are all alone. Anyway thanks for joining and have a great weekend!

    • Profile picture of Anonymous
      Anonymous replied 10 years, 4 months ago

      Thanks Maria…It is very nice to meet someone else that has the same issues. I don’t personally know anyone who has had brain surgery before….so this is so new to me. I talk to a lady from the gym who had her life changed by breast cancer….she’s going through that now, so we are kinda on the same timeline.

      I’m dealing with a lot of the…[Read more]

      • Profile picture of Anonymous
        Anonymous replied 4 years, 11 months ago

        I know how you feel! I just want to tell people, “This isn’t the real me! I’m better than this, I’m happier and more energetic and out going,” you know? Its hard having a handicap that no one see’s. But I guess I just have to accept this “new normal” everyone keeps talking about.

  • Profile picture of Anonymous

    Anonymous posted an update in the group Group logo of Cognitive IssuesCognitive Issues 10 years, 4 months ago

    Right now I’m in a french existentialism class and I feel like I relate strongly to Jean Paul Sartre in Nausea. One of the great themes in his book is that language is a thin veneer that separates us from the real world and that when one understands this it is at the same time liberating and nauseating. With all the speech aphasia issues I have…[Read more]

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