Home Forums Support and Opinion Forums Open Discussion Forum Trigeminal Schwannoma – Anybody have/had one of these? Reply To: Trigeminal Schwannoma – Anybody have/had one of these?

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Shirley M

They think I have one. (They also said it could be a meningioma.) It was found last year when I had a MRI trying to find out what was causing trigeminal neuralgia. I’ve had follow up MRIs and they don’t think it’s growing too fast. I had a copy of an MRI from January 2010 when I had a week long headache. The tumor was not there then, so they know it’s only a few years old. The doctors at University of Chicago are in no hurry to take it out. Mine is in the Meckel Cave area and difficult to get to. They are trying to control the pain of the trigeminal neuralgia with meds. If I exhaust all the different types of meds they will finally do surgery. Mine is 1.9 x 1.9 x .6 cm.