Hi Kristen. Welcome. I’m happy that this site is here for you and everyone else diagnosed. I wish this or similar was around for me. I was diagnosed in 1985, age 11. I had 2 operations and radiation. Remember that every tumor situation is different, even in the brainstem. I know that there are others who have inoperable tumors but, it’s so hard for me to imagine since mine was treated by surgery. What hospitals have you gone to? Try going to the best, if possible. There is a nutritionist by the name of Jeanne Wallace. I’ve heard good things about her. Look her up.
I don’t have any answers for you.
I am working on having this website grow with better information, etc. But it’s really done just by me. For now start forums, blog, whatever, that will help you. Let me know if I can help with anything. Good luck.