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    • #771 Score: 0
      Misti Jo M

      I am Misti Jo M. I am a separated mother of two. I have been sick for two years. First spinal cord tumor and tethered cord, on way to healing and now meningioma which I have surgery scheduled for removal for hopeful total excision on April 2. Don’t know much about what’s going to happen until my neuro gets back from where ever on earth he is, but I will find out plenty soon enough. Just tired of consistent diminished quality of life and severe daily debilitating headaches and facial swelling. There are alot of things Im tired of but I’ll leave it at that. I had to send my kids away because I can no longer care for them or myself. I cannot eat a meal without vomiting so I live off of shakes but they are nourishing and I can hold them down…need to make on soon. I have been diagnosed bi-polar since age 13. My spinal cord tumor had a small portion resected so to decompress my cord, but I have learned that it is actually a birth defect and the tumor is too large to remove due to damage that will be done to my spinal cord. Time will tell when the chair with wheels will be necessary and I am just not even worrying about that except how to pimp my ride. I hope that after I have my tumor Alfred removed and can get some normalcy back that I can get my children back (at least the youngest). I think the oldest is settling in where she is and is happy. I want to be the best mommy that any child could ever dream of having, the best friend that anyone could want and I want to just finally live after so many years of wanting to die. I live in the beautiful mountains of western North Carolina and wouldn’t want to be anywhere else. I want to travel though, but this will always be my home. I hope that in some way I can be an inspiration and helpful to others in ways I never thought possible.

    • #774 Score: 0
      Indy

      Hello all I go by Indy ;). Just diagnosed with a mass in the pituitary region… some say that’s not the same as a brain tumor but mine is causing neuro issues. I have only so far been told it’s a mass that has had a bleed. Consistent with a pituitary tumor. Looks as though it has invaded the maxillary sinus.
      I have been so tired, not at all hungry, migraines, using opposites- like calling a spoon a fork, even though I intend to say spoon, fork is what comes out. Sudden anger for no reason. Terrible short term memory problems.
      Seeing the neurosurgeon next week. Feel like all my years of knowing something was there, but being unable to get mri to prove it, are vindicated. ( have pacemaker, in a study evaluating mri use in certain instances. Lucky for the study. )

      Oh… and I am 35. Usa. 🙂

    • #776 Score: 0
      Lish

      I’m Lish,
      I had a low grade glioma. I say had because I had my crani 3 weeks ago. I hate the fact that if you have a glioma they automaticlly call it “Brain Cancer” . Although, they called my tumor benign

    • #778 Score: 0
      Ami

      Hi I am Ami my son has/had JAP in his cerebellum taken out in march 08 we are watching him now through MRI along with after a year of his surgery we found 7mm t2 signal no mass effect in his thalmus.

    • #884 Score: 0
      Michael J

      My name is Michael and I am 34 years old and come from the UK. I have had visual problems due to migraine for some time and eventually plucked up the courage to go for an MRI.

      Thursday gone, I had a phone call from the ophthalmologist at the hospital; she asked me to come in so we could talk. When I arrived she informed me that me visual problems was related to migraine; an irregular blood vessel had not seemed to have repaired itself after a migraine event and its left me with a permanent aura in my lower left visual field.

      However, there was more. She then went on to inform me that they had found a lump/tumour at the back of my head towards the middle(incidental finding), she went on to state that it looked benign as it was localised and was not putting pressure on anything important; hence the reason why no symptoms have manifested. The next step is to go see the neurologist next Wednesday to see what cause of action needs to be taken. Obviously I am concerned, questions need to be answered, such as how big? how long has it been there?, what type of tumour? Exact location? Is it growing? etc. I am a bit on edge till then, luckily the doctor took mercy on me and prescribed me some valium to keep me calm until the appointment. Any advice or support is much appreciated and like wise in time I want to offer the same to other people.

      • #895 Score: 0
        Susan G

        Hi Michael. I went through somethng a bit similar (all our stories are so different) that started four years ago. Seizures (smelling rubber) led to MRI led to identification of lesion, a year of differential diagnosis, finally surgury to remove the lesion, most of my right temporal lobe and finally find the culprit … a very slow growing Grade 1tumor. What I learned is that when the choice to make is not obvious, that can sometimes can be a good thing. A grade four tumor is going to require action. If we are lucky enough to have a low grade tumor that is not threatening our lives, we have to make choices that fit our personalities. Some of do better with uncertainty than others and that’s a factor to consider. A benign tumor can take decades if ever to get to the next grade … and a wait and see approach …. which may involve ongoing MRIs and maybe some seizure meds …works fine. For others like myself who do not handle uncertainly well, a surgical intervention that carried very little risk may be worth the peace of mind in terms of removing the tumor. I found it very important to have a doctor who I trusted to be completely honest with me about the risks and opportunities associated with my choices, and who I knew was not pushing any agenda of his own. I was very lucky to have him. . You know yourself better than anyone … and once you have all the information you can get .. you will make the right choice for yourself

        • #897 Score: 0
          Michael J

          Hi Susan, hearing about your story and experience is deeply fundamental to me at this moment in time for reasons I probably could not put into words, thanks so much for the advice and support, I really mean that!

          • #898 Score: 0
            Susan G

            You are so welcome. I will keep following up to see how your story develops. Anything in the brain has this weird effect sometimes of making us feel like we are losing our selves. It’s an illusion. We are still fully who you are … all there .. and we know what we need to do to make the right decisions for ourselves.

      • #889 Score: 0
        Kasi K

        Oh, the Valium was nice. My doctor was kind enough to give me a large Xanax prescription with some refills when my husband was diagnosed with his brain tumor.

        My advice would be to try to not worry until you know what you have to worry about. I really do know that it is easier said than done but it is really possible to drive yourself mad with worry. We (my husband and I) did A LOT of busy work in the days leading up to his surgery and other appointments. (My house had never been more clean!) It was really the only thing we could do.
        I am sorry that you have to deal with this.

        • #890 Score: 0
          Michael J

          Please don’t feel sorry for me, I am fit and healthy at the moment and regardless of what the NS says next week, I am not going to have any sort of invasive surgery if he suggests it, I will live my life keep the faith and let nature take its course. I hope things are better for you now.

    • #782 Score: 0
      Tiffanie D

      Hi Beth. I am new to this site. Thank you so much for your efforts in bringing awareness to benign brain tumors. In June 2012, I began having blurred vision in my left eye. I thought it was related to my sinus infection. I went to my eye dr, who then sent me to a retina specialist, who then sent me to a neuro opthamologist. By the time I saw the last eye dr, I had lost almost all vision in my left eye, and my right eye was beginning to blur. I was diagnosed in August 2012 with a pituitary adenoma. It was golf ball sized, resting on my optic chiasm (hence the vision problems) and had invaded my right spenoid sinus. It was also very close to my carotid artery. I had surgery (through my nose) to remove most of the tumor. I woke up with all of my vision restored. I was in excruciating pain for at least 2 weeks post opp. Since the surgery, I have developed joint pain that was horrific, headaches, sinus pressure, and thyroid conditions. I am now taking medicine for my joint and thyroid. I will have gamma knife next month. My tumor was “atypical” which means that it will likely grow back.
      I have been struggling with the “being grateful” for survival issues. I am more upset that my life just one year ago was completely different. I am tired all the time. I struggle to get out of bed some days. I have trouble focusing at work.

    • #780 Score: 0
      Steffanie

      Hi everyone!
      My name is Steffanie Moriarty and I am currently 26 years old. I was 24 when I was diagnosed with my brain tumor. I was beginning to have headaches on a daily basis and was experiencing absent seizures (which I thought at the time was just low blood sugar). I knew something was wrong when I started getting sick every morning from the increased intracranial pressure. I had just started nursing school at the time so I thought that the headaches may be induced from the stress that I was experiencing, but deep down I knew it was a bigger deal. I went to the ER on my dads birthday ( I didn’t have insurance) and found out that I had a brain tumor the size of a golfball at my left temporal lobe and surrounding my optic nerves down to the base of my skull. I think that night was the hardest night of my life. I was in the hospital for 6 days when the morning of my surgery my surgeon came in and told me after doing soul searching he didn’t feel equipped enough to do my surgery and due to my age wanted to send me to somebody else. That was hard to hear. I didn’t think it was that bad, I week later I was in a different neuro icu undergoing surgery with someone who specialized in where my tumor was located. I am happy to say that he used my videos to teach other neurosurgeons through mayo clinic, it was the only good thing I could see at that point. My eye and the complete left side of my face was taken out and down in order to get to the whole tumor. He did an amazing job putting me back together. He also did a fat graft of my stomach to fill in some extra spaces.

      After my surgery I was offered disability but refused to accept it. My life’s dream was to help people and I have always been determined to be a nurse! I graduate with my RN in 4 months!! I am proud of myself but sometimes have a really hard time letting go of my past. I am scared sometimes of my tumor coming back… since my surgery I have had patients with brain tumors who I was able to talk to, its been such a blessing! But I still battle anxiety on a daily basis and sometimes have a hard time remaining positive. I came to this site for inspiration and to be able to relate to people. I am thankful to have found you all and look forward to speaking with all of you!

      • #893 Score: 0
        Lisa M

        Wow! That’s what I have to say! Wow! You are an inspiration! I had a surgery to remove a brain tumor on August 1, 2011 and am having a hard time recovering emotionally, psychologically, and physically but mostly the first two. I am coming along nicely physically. Luckily my biggest side effect from the tumor is pain that is beginning (finally!) to subside. I have daily headaches but up until a few weeks ago they were 24/7 so I am blessed that they have subsided somewhat!! 🙂 🙂 You have been through so much and have perservered!! (Did I spell that right? 🙂 Didn’t go on disability and continued your dream of nursing…..that is absolutely awesome….so proud of you! You are quite a bit younger than I…I am 48 years old now so I didn’t bounce back quite like I might have if I would have been younger but I think I did okay. Next MRI for me is in about a month. Wish me luck! Continued blessings for you! Keep your chin up. You are touching others…you touched me!…You are doing what you set out to do. God Bless!

    • #874 Score: 0
      Michelle R

      Hello Everyone:

      My name is Michelle and I was just diagnosed with a tumor on the pituitary gland on June 20, 2012. The PA said I had a glioma, but the endocrinologist also said that I have something called Partial Empty Cella syndrome. He didn’t mention a glioma, so I am a little confused.

      The way I was diagnosed goes as follows: Around May 14, I was getting help with chronic sinusitis. I had a tight feeling in my head, as well as inflamed sinuses, sinus headaches and ear drainage. Nothing they did seemed to help. The doctor ordered an x-ray, which didn’t show anything.

      Fast forward to June 14, 2012. I got a severe case of vertigo. Another doctor had put me on meclizine, which helped for a while but I thought gave me another headache, so I didn’t take another dose on Sunday. Well on Monday, the 18th the vertigo was so bad that my Mom called 911 and I was rushed to the ER. The ER doctor came in and told me that my CT Scan looked normal and that I could go home. I then told him “I haven’t felt normal since before 05/14/2012. I have had a tightness in my head, chronic sinusitis, ear problems, etc. and no one has been able to give me a straight answer as to what is going on”. He then told me that I could be observed overnight. The endo told me the next day that he saw something abnormal and that I should get an MRI (which I did).

      Feeling pretty mad at the ER doc and the radiologist, I made a comment to the MRI tech. This is what she told me what might have happened: “The ER people most often look for trauma type things, such as a blow to the head, so they can sometimes miss the “small” things like a little tumor. They shouldn’t, but they sometimes do.”

      The endo also said that I have a small tumor and that the tumor doesn’t grow very fast, but can present a lot of problems when it gets bigger. He also found that my thyroid levels were way off. He increased the dosage from 175 mcg to 200 mcgs.
      So far, I have appointments with four doctors this month: The ENT (I have had ear problems since I was 6 years old. I have also had sinus problems recently, plus the ENT had to put in a tube that had fallen out of my left ear — something that has happened to me before).

      I also have appointments with the endo, a neurologist and the opthalmologist (my vision seems fine right now).

      What also happened was that my mother was put in the same hospital on the same week (but different days). It turns out that she also had a severe case of vertigo, but her CT Scan came out normal. It turns out that she has had to get her ear crystals realigned.

      So I am processing a lot of emotions right now. Things seemed to be going well for me (I am learning guitar and was approached by the music minister of my church to play guitar. This will be such a huge step for me. Also, I was asked to coordinate the breakfasts/coffee hours at church).

      However, the things that concern me are the fatigue and possibly losing more of my hearing (although that may not be related to the tumor) and possibly losing my sight.

      The one thing that I consider to be good about this is that it finally now answers a lot of questions that I have been having for a long time. It seems that I had a lot of the symptoms (migraines, sinus problems, etc) that no one was able to connect and now the dots have been connected. I also consider this to be a blessing, although I just wish that people would understand what I am going through.
      Michelle

      • #876 Score: 0
        Kasi K

        I am also extremely angry about my husband’s CT scan. Not only was his tumor missed by the ER docs (which I get, they were looking for bleeding) but also by an internist and the NEUROLOGIST. I was livid. Thank goodness an MRI was ordered so that it was caught.

        • #878 Score: 0
          Michelle R

          Well, Kasi, I feel your pain. What I have been telling people since this time is that you have to be your own best advocate! If I hadn’t insisted that I be evaluated, I would have gone home not knowing about the tumor.
          Michelle

          • #879 Score: 0
            Kasi K

            LOL, I just said those same exact words on another site!

    • #872 Score: 0
      Victoria B

      I am a survivor. This all happened so fast that my head is still spinning. I was in travel status on May 14 and got sick with food poisoning. Since my blood pressure runs so low I passed out while i was being sick in the hotel bathroom. When i woke up and saw the puddle of blood I knew I needed help (something I don’t normally ask for under any condition). I called my supervisor and he and his supervisors showed up at my room and said I had to go to the hospital since I lost consciousnous (sp). The ambulance was called and arrived within 5 minutes. They strapped me to a gurney and said hospital is the right choice. They loaded me in ambulance and the driver must have been an idiot as he was in a huge hurry. He jumped a curb and made a hard u turn so i looked at the emt in the back with me and asked for a puke bag. She handed me one and since you cant lie flat on your back and puke i got up on my right elbow and leaned over the side to be ill. now why the emt permitted this i have no idea but i did get sick and again passed out with my mouth crashing down on ambulance railing and cracking all my front teeth. I get to hospital and they do a CT scan of my head to make sure I didn’t harm myself when i passed out and hit my head. The ER doc came in and said you didn’t hurt yourself But you have a tumor on your pituitary gland that is about the size of a plum. I couldn’t think clear other than i want to go home. The next morning i flew home and my daughter picked me up and took me straight to a ER here. They admitted me and now more than a month later I am home with 90 percent of the tumor removed and looking at 5 radiation treatments in the next week or so. The vision in my right eye is blurry and the right optic nerve had to be peeled off the tumor. Left one was just pushed aside and at least my carotids weren’t involved. I sit here and realize that I have lost a month and am not sure of all that happened. My daughter is keeping me sane and i’m glad she lives with me though I hate being a burden to her. So how long before things get normal again?? How long before they let me drive again?? When is it all real??

    • #831 Score: 0
      Mandy A

      Hi everyone
      My 22 year old son, Ross was diagnosed recently with what they call ‘a type of Glioma’ in the left frontoparietal area.
      From the MRI the Neurosurgeon and Oncologist say its benign and probably been there 10-20 years.
      I dont really feel very happy not knowing the exact tumour type but they wont do a biopsy or operate as he has no symtpoms other than the odd seizure (now controlled on Lamictal).
      Its ‘watch & wait’ – Its in an important part of the brain too.
      I see their point but am worried that taking no action will eventually make matters worse. His next MRI is September (6 months on).
      Is anyone else in this position?

      • #833 Score: 0
        Beth Rosenthal

        Hi Mandy. I’m sorry to hear about your son. I think there are a number of members on “watch & wait” here on ijb.org. I know this is a scary diagnosis but, it’s better to hold off on surgery. Being a childhood survivor myself, any effects he has will impact his education, career, relationships, and retirement. And he’ll probably have some side-effects from the surgery that will affect his entire life. There are no guarantees with brain surgery and you can’t undo it once done. Advancements happen everyday, so why not wait for something even better than used today? Good luck.

        • #849 Score: 0
          Mandy A

          Thanks Beth
          You have put some perspective on it for me.

    • #829 Score: 0
      Sarah C

      Sarah (32) from Sydney. I was recently diagnosed with what they thought was a low grade astrocytoma but I had surgery on the 1st June 09 and it was a Ganglioglioma Grade I-II.

    • #826 Score: 0
      Philip J

      hi beth thaks for the site i had no one to talk to or get advice my name is phil im 30 i had my tumor when i was 21 in the left front side of tmy brain on one paper they said it was a craniopharyngioma than on another it said epidermoid cyst i am noit haveing an easy time with it giot no help after except a couple of mri the docs in st.thomas are not that educated and dont tell me ,much my fam is very religious so they seeked answers from him/her i love my creator and all it just well docs are here for a reason i dont work much and haveing a hard time being able to take care of myself financially no insurance and evryone knowing my medicl bussiness didnt help with me and jobs im getting more and more isolated want to do less and less and find myself staring at a wall sitting in my room doing nothing but flicking through the channels for days all the anti deprssants make me feel much worse and docs down havent taken my headakes to serious my fam is hard working people that do everything themsellves them seeing me sitting around has made them how do you say disappointed i have not been able to get a girl friend since my fiancee left a cuple months after my surgery and married the first healthy guy she met i guess im just not into it like i was sometimes want to leave start a new life where no one knows me thanks again it was great getting that out thaks you are a blessing thanks .

      my tumor was the size of a baseball

    • #814 Score: 0
      Lisa

      I am a survivor of almost 20 years (was 22 y/o when diagnosed & had surgery). I had a Subependymal Giant Cell Astrocytoma on my 3rd ventricle. It was only the size of a pea (maybe a marble) but it was causing me problems…lethargic, flu-like symptoms, was hot when I should have been cold and cold when I should have been hot, headaches, mood swings, intermittent vision loss. The doctors think the tumor had been there all my life based on what it was composed of. The hardest part was looking in the mirror after the bandages had been removed and seeing my bald head. I had long hair up until my surgeries. For the longest time it was difficult for me to look in the mirror. It was a visual reminder of what I had been through. It took a while but my hair grew back. That, however, didn’t shore-up what was going on inside of me. There really wasn’t anyone who could relate and I felt so alone. My mother was afraid for me to try and walk and my father was pushing me to do more than I had energy to do. When I went out people stared at me (I was pale, thin and bald…they all thought I had cancer. Then I got the, “Thank the lord it wasn’t cancer.” I remember thinking…so does that make what I just went through chopped liver?

      I am so glad I found this web site. I hope to be able to help those who are now going through what I went through 20 years ago. You are not alone.

    • #806 Score: 0
      Candy W

      Hi everyone..my name is Candy, and I live in Garland, TX, outside of Dallas. I was diagnosed a month ago with 2 meningiomas. Both are midline. One is 2 cm and is in the back. The other is smaller than that and in the front. I saw a neurosurgeon this week and he said he wanted to wait 6 months, do another scan and see if they have grown.
      This is all so new to me and I have no clue what to expect. Since I don’t know what to expect, I don’t know what to feel. Do I feel hopeful, that it isn’t that big, and typically doesn’t grow fast? Do I feel scared because the bigger one is adjacent to the fine motor skills area and I could lose lots of that? Do I feel paranoid, just wondering how long will it be before they cut me open and do surgery that will make me have lots worse problems than I have now? The neurologist I saw in the beginning said it was nothing to be concerned about. That’s hard to believe.
      It’s so weird to be having a really normal, great life and then all of a sudden, you find out you have 2 brain tumors, and well, they aren’t going to do anything about it right now, and you’re supposed to be OK with stuff growing in your head, not knowing what the outcome will be.
      Any words of wisdom would be greatly appreciated. Thanks for being there, y’all.
      Candy 🙂

      • #810 Score: 0
        Terri L

        Hi Candy! I am in the same boat as you, mine is also slow growing but when is it a serious matter? I actually work with my Neurologist, and he encourages me to do the research. So, go to reputable sites, and read all you can. I don’t believe you can know too much. Good luck and keep posting!!!!

      • #808 Score: 0
        Susan G

        Candy,
        What helped me deal with a year on undertainly that led to a partial lobectomy to finally diagnose a rare benign tumor … was my relationship with my doctor. I ended up putting up a lot of trust in him, both in how to proceed and how to feel about the decisions I made. I got to know him quite well over a year and the sense of trust I have developed helps me a great deal.

    • #802 Score: 0
      Anna-Stina T

      I’m 37 and I live in Sweden (the Northern part of Europe). I was diagnosed with Cerebellum Hemangioblastoma and had surgery in April last year. Sweden is a small country (9 million inhabitants), and only 5-10 Swedes get the Hemangioblastoma diagnosis every year. Through my blog and in hospital I have been able to get in contact with a handful of those persons. But as a patient you always search for more information and want to learn from others who’s had similar experiences. I hope you all have patience with my incorrect English writing…. 🙂

      Getting the diagnosis was a great chock (obviously). I had emergency surgery as the tumor had grown to a life threatening size and location. The operation was curative, and I was explained “cured” when I woke up. But my year have been all about coming to terms with what happened to me, and I feel so lucky that I survived. My perception of life have changed. I feel blessed, but at the same time scared and wierd. And I have been afraid of recessions.

      After my first MRI after the surgery (in June this year) that showed I have nothing to fear in my brain, I feel that I want to – and is able to – lead a normal life, as the next person. Me and my fiance want to have kids, for one thing. Can my life continue now – after one year of “pause mode”?

      • #870 Score: 0
        Lisa M

        Hello! My name is Lisa Morgan. I had a craniotomy for a hemangioblastoma last August. It was also in my cerebellum. It was 13 mm and was removed entirely. I am doing well and you will too! I still have chronic daily headaches and don’t feel like the person I did before surgery. Maybe I never will. Have been back to work since October. I don’t have the stamina or the balance that I once did. I have to daily remind myself of how fortunate I really am. I survived a brain tumor! Right? The psychological struggles are much more than I ever realized. I have received several follow up mri’s since and all looks good. There is a spot that they will continue to watch but I don’t have to go back to my neurosurgeon for 1 year. That is awesome! I have been looking at my life day to day since surgery (or really since my diagnosis). To think that I can’t look out a whole year now is so exciting. That almost sounds negative but I guess when you go through such a traumatic thing and your life changes instantly, that is a natural way to think. I wish you the best. I am 48 years old. I have 4 children – 2 natural and 2 step children. I am so blessed. I look forward to having grandchildren in the future. For you to be looking at having children is such an exciting thing! Live life to the fullest! Not one of God’s children knows how long their life on this Earth will be. God Bless!

    • #794 Score: 0
      Susan G

      I’m a survivor … had brain surgery six eeks ago. Partial removal of a DNET. I feel like I am “Supposed” to feel OK about this given that DNETs are very slow growing and seldom turn malignant. But no one seems to know much about adult DNETS. Do you know of anyone else here who has this type of tumor?

      • #812 Score: 0
        Sonia J

        Hi S
        How r u doing? My daughter, has a possible DNET, did u have daily headaches before surgery? Any seizures? I am here if u want to chat.

      • #796 Score: 0
        Beth Rosenthal

        Hi Susan and welcome. I don’t know any member on here who has had your type of tumor. That doesn’t mean that no one on here does. Why don’t you write a blog on here and ask? Someone may respond that way. Or look at some of the other member’s profiles. These members are very friendly and supportive.
        I will look during the week. Write now I’m running this site by myself and I also have my paid employment. If I come across anything I’ll let you know. Keep me posted.

    • #790 Score: 0
      Kristen

      Wow, hi everyone! First off I want to say thank you so much for creating this website! I am 24 years old and found out last year that I have a ganglioglioma in my brainstem, which is a benign, very slow growing tumor. However, the doctors say that it is inoperable due to its location. They think I have probably had it my whole life due to its size (they said its about the size of a toy car, except every doctor I went to said something different because it is odd shaped and hard to determine the size!)

      I have been searching for some type of support but haven’t been able to find it. After coming to this site I was so excited!!! There actually are other people that have benign brainstem tumors!! Not that that is a good thing, I am very sorry that any of you have to go through this, but I don’t feel quite as alone. No, I don’t have cancer, but my tumor is not treatable, so I have to live with my symptoms for the rest of my life (unless they figure out how to get rid of the tumor).

      • #792 Score: 0
        Beth Rosenthal

        Hi Kristen. Welcome. I’m happy that this site is here for you and everyone else diagnosed. I wish this or similar was around for me. I was diagnosed in 1985, age 11. I had 2 operations and radiation. Remember that every tumor situation is different, even in the brainstem. I know that there are others who have inoperable tumors but, it’s so hard for me to imagine since mine was treated by surgery. What hospitals have you gone to? Try going to the best, if possible. There is a nutritionist by the name of Jeanne Wallace. I’ve heard good things about her. Look her up.
        I don’t have any answers for you.
        I am working on having this website grow with better information, etc. But it’s really done just by me. For now start forums, blog, whatever, that will help you. Let me know if I can help with anything. Good luck.

    • #770 Score: 0
      Beth Rosenthal

      Are you a survivor? A loved one? A supporter? Why did you seek out this website?

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